Hey friends! Even before Nova was diagnosed with Dravet, I have always had a great interest in child development. I wanted to make sure I was making the best choices…
Hey friends, family and fellow fighters! Today I just wanted to share some products that have made our medical daily lives easier. None of these are "essential" to caring for…
Holy Cow! Mama's been slacking on the blog posts! I am so sorry about that-this month has been pretty crazy! Let's get the bad out of the way first-both girls…
Hey friends, family and fellow fighters- in case you missed it on our other social medias, we launched Warrior Wear! This apparel line is perfect for you to wear on…
Hello family, friends and fellow fighters, Today is one week exactly since we completely stopped Diacomit for Nova. The reason we chose to do this is we were not experiencing…
Hello family, friends and fellow fighters, Today I'm going to share the story of uncovering the genetics behind our girls' Dravet diagnoses. Before sharing our story, I wanted to share…
In my last post about Nova's journey, I ended with sharing that around her first birthday we decided to switch neurologists. I still to this day wonder if that was…
This is our first warrior princess, Nova. Nova's name means bright star, and that is just what she is. Her middle name is named after my closest cousin, and she…
This is our youngest warrior princess, Denver. Denver is named after my hero and favorite person, who passed too soon to meet my babies- my grandfather Denney. Denney was a…