Warrior Princesses – Page 3 – Spreading Dravet Syndrome Awareness

Hello everyone! I am so excited to announce that I will be doing a blog-mas to countdown to Christmas! As long as God permits with the girls health, I will…

Addi EpilepsyMama December 1, 2025

Denver Nova

Update on the Girls

Hey friends! First off, I am sorry for my venting last week-sometimes these things are just hard! My hope in sharing the hard times, is when another parent is up…

Addi EpilepsyMama November 7, 2025

Mom's Marvels

A Dravet Mom’s Diary

Hi friends, family, and fellow fighters- I want to start by saying, I am sorry in advance- but this post is not going to be my usual happy/grateful/positive post. Today…

Addi EpilepsyMama October 29, 2025

Recommendations

Blue Tint Sunglasses

Nova has struggled with severe photosensitivity for about a year and a half now. We truly can not go outside at all due to her having extreme drop seizures. We…

Addi EpilepsyMama October 7, 2025

Denver Nova

Nova and Denver Update

Hello family, friends and fellow fighters, Today's post is just going to be a quick update on Nova and Denver. Since taking Nova off of Diacomit last month, we have…

Addi EpilepsyMama September 19, 2025

Recommendations

The BEST Medicine Syringes

With two kids having Dravet we use soooo many medicine syringes. Most medicine bottles come with their own, however over the years I have found those typically don't last. We…

Addi EpilepsyMama September 12, 2025

Pop-Pop's Perspective

A Picture is Worth a Thousand Words…

Hello everyone, I am Pop-Pop. I wanted my first post to convey my perception of my granddaughters. Since my first moment holding Nova, from the first panicked phone call "Dad,…

Dustin Wilson September 9, 2025

Denver Nova

Pediatrician Appointment/ Dravet Resources

Hello family, friends, and fellow fighters :) Today we had an AMAZING pediatrician appointment for both Nova and Denver! After talking with a few wonderful people in our Dravet community,…

Addi EpilepsyMama September 5, 2025

Denver

Denney’s Early Intervention Assessment

Hello family, friends, and fellow fighters, One of the awesome resources Florida has available is their Early Steps program. It is a no cost program that offers support for children…

Addi EpilepsyMama September 4, 2025

Meemaw's Moments

Purpose

Hi, I'm Meemaw! Trying my very best to see the world through these lil ones' eyes. I was always unsure of God's purpose for me. When I met Nova, I…

Meemaw Wilson August 24, 2025