Warrior Princesses – Page 3 – Spreading Dravet Syndrome Awareness

Nova and Denver Update

Hello family, friends and fellow fighters, Today's post is just going to be a quick update on Nova and Denver. Since taking Nova off of Diacomit last month, we have…

Addi EpilepsyMama September 19, 2025

Recommendations

The BEST Medicine Syringes

With two kids having Dravet we use soooo many medicine syringes. Most medicine bottles come with their own, however over the years I have found those typically don't last. We…

Addi EpilepsyMama September 12, 2025

Pop-Pop's Perspective

A Picture is Worth a Thousand Words…

Hello everyone, I am Pop-Pop. I wanted my first post to convey my perception of my granddaughters. Since my first moment holding Nova, from the first panicked phone call "Dad,…

Dustin Wilson September 9, 2025

Denver Nova

Pediatrician Appointment/ Dravet Resources

Hello family, friends, and fellow fighters :) Today we had an AMAZING pediatrician appointment for both Nova and Denver! After talking with a few wonderful people in our Dravet community,…

Addi EpilepsyMama September 5, 2025

Denver

Denney’s Early Intervention Assessment

Hello family, friends, and fellow fighters, One of the awesome resources Florida has available is their Early Steps program. It is a no cost program that offers support for children…

Addi EpilepsyMama September 4, 2025

Meemaw's Moments

Purpose

Hi, I'm Meemaw! Trying my very best to see the world through these lil ones' eyes. I was always unsure of God's purpose for me. When I met Nova, I…

Meemaw Wilson August 24, 2025

Mom's Marvels

Mom’s Marvels: How My Daughters Saved My Life

Today I'm going to be sharing a little bit of my life's journey and how my daughters helped me find my purpose. As a very young child I struggled to…

Addi EpilepsyMama August 23, 2025

Nova

Nova’s Experience Stopping Diacomit

Hello family, friends and fellow fighters, Today is one week exactly since we completely stopped Diacomit for Nova. The reason we chose to do this is we were not experiencing…

Addi EpilepsyMama August 22, 2025

Denver Nova Our Family- stories, genetics, who we are, etc.

The Story of Our Genetic Mutation

Hello family, friends and fellow fighters, Today I'm going to share the story of uncovering the genetics behind our girls' Dravet diagnoses. Before sharing our story, I wanted to share…

Addi EpilepsyMama August 17, 2025

Nova

Meet Nova-Part 2

In my last post about Nova's journey, I ended with sharing that around her first birthday we decided to switch neurologists. I still to this day wonder if that was…

Addi EpilepsyMama August 10, 2025