Posted inMom's Marvels
A Dravet Mom’s Diary
Hi friends, family, and fellow fighters- I want to start by saying, I am sorry in advance- but this post is not going to be my usual happy/grateful/positive post. Today…
The Story of Our Genetic Mutation
Hello family, friends and fellow fighters, Today I'm going to share the story of uncovering the genetics behind our girls' Dravet diagnoses. Before sharing our story, I wanted to share…
Posted inNova
Meet Nova – the OG Warrior Princess
This is our first warrior princess, Nova. Nova's name means bright star, and that is just what she is. Her middle name is named after my closest cousin, and she…