Denver and Nova are still so young we haven't started a TON of traditions with them, but there are a few. Every Christmas since 2023, they each pick out their…
My number one favorite childhood Christmas tradition was every Christmas Eve my brother, sister and I would have a sleepover in the same room and watch Christmas movies together. I…
This is a very simple, delicious way to make a sweet ham for holidays. For this recipe you need a spiral cut ham, brown sugar, pineapple slices, toothpicks and maraschino…
I wanted to share our family no bake cookie recipe. This recipe is very easy, but timing is very important. I don't have a photo because I am making them…
Hey friends, family and fellow fighters! I am trying my best to post everyday, but life is definitely getting busy lately. I'm just going to do a quick update on…
Well yesterday I didn't make it to a post sadly! Nova and Denver both had pretty rough days yesterday. Nova was shaking pretty much all afternoon- it was a super…
HoHoHo! We are kicking off blogmas with a classic Warrior Princesses post. Today we are just going to update on Novie and Denver. Nova has been doing SO WELL on…
Hello everyone! I am so excited to announce that I will be doing a blog-mas to countdown to Christmas! As long as God permits with the girls health, I will…
Hey friends! First off, I am sorry for my venting last week-sometimes these things are just hard! My hope in sharing the hard times, is when another parent is up…
Hi friends, family, and fellow fighters- I want to start by saying, I am sorry in advance- but this post is not going to be my usual happy/grateful/positive post. Today…
Nova has struggled with severe photosensitivity for about a year and a half now. We truly can not go outside at all due to her having extreme drop seizures. We…
Hello family, friends and fellow fighters, Today's post is just going to be a quick update on Nova and Denver. Since taking Nova off of Diacomit last month, we have…
With two kids having Dravet we use soooo many medicine syringes. Most medicine bottles come with their own, however over the years I have found those typically don't last. We…
Hello everyone, I am Pop-Pop. I wanted my first post to convey my perception of my granddaughters. Since my first moment holding Nova, from the first panicked phone call "Dad,…