Hello everyone, I am Pop-Pop. I wanted my first post to convey my perception of my granddaughters. Since my first moment holding Nova, from the first panicked phone call “Dad, I think Nova is having a seizure…”, to the arrival of Denver, more panicked phone calls… This journey has been enlightening. I had always considered myself a strong willed, tough guy. A person who would do anything to keep my family safe. For many years I succeeded, without fail. That was until these angels graced my existence. I realized, quickly, just how helpless I felt. I couldn’t protect my daughter from her reality. I couldn’t protect my granddaughters from genetics. I, damn sure, couldn’t protect myself from the impact of the research.
After researching Dravet Syndrome, I found myself overwhelmed with helplessness and frustration. Here are these two beautiful angels and I can’t protect them from the seizures. I can’t protect them from hospital visits. My whole identity in life has been a protector! The whole person I am was built on the philosophy that I will do anything for my family. So, who will I become? Have I failed my family? Well, I found out the answer, I AM Pop-Pop! From the first time Nova said it, to today as Denver points and says “Pop”… I am and forever will be Pop-Pop! A proud grandfather who has seen what true strength is. I’ve held both of these angels through seizures; I have held their tiny hands. I’ve always thought I was strong and tough, these girls are Warriors… My little Warrior Princesses
The picture featured in this post is how I perceive these girls. They are truly warriors fighting every day. They fight with all the joy and happiness of every other toddler. They fight to survive, and I will be here to hold their hands every step of the way!
