Our Mission
We are a young family learning how to navigate life with Dravet Syndrome, and we want to share our girls’ stories- the hard days, the little victories, and everything in between. Alongside us, you’ll also hear from Meemaw and Pop-Pop, their grandparents, because this journey touches every part of our family.
Our hope is simple: that by being open about our experiences, other parents, grandparents, and caregivers will see pieces of their own story here and feel less alone. Dravet is rare, but together we can create a community full of understanding, love and hope.