Exciting Things Coming!
Hi friends and family! We are working on releasing something exciting in the next week or so that will be a way you can help show support to Nova and…
Blogmas Day 15-Traditions We Are Starting With My Kids
Denver and Nova are still so young we haven't started a TON of traditions with them, but there are a few. Every Christmas since 2023, they each pick out their…
Blogmas Day 11 – The YUMMIEST No Bake Cookies
I wanted to share our family no bake cookie recipe. This recipe is very easy, but timing is very important. I don't have a photo because I am making them…
Blogmas Day 5-Complications of Dravet
Hey guys, today I wanted to dive a little bit deeper into what Dravet is. Dravet is not just seizures, it is considered a DEE (developmental and epileptic encephalopathy). A…
The Story of Our Genetic Mutation
Hello family, friends and fellow fighters, Today I'm going to share the story of uncovering the genetics behind our girls' Dravet diagnoses. Before sharing our story, I wanted to share…