Nova and Denver Update
Hello family, friends and fellow fighters, Today's post is just going to be a quick update on Nova and Denver. Since taking Nova off of Diacomit last month, we have…
Pediatrician Appointment/ Dravet Resources
Hello family, friends, and fellow fighters :) Today we had an AMAZING pediatrician appointment for both Nova and Denver! After talking with a few wonderful people in our Dravet community,…
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Nova’s Experience Stopping Diacomit
Hello family, friends and fellow fighters, Today is one week exactly since we completely stopped Diacomit for Nova. The reason we chose to do this is we were not experiencing…
The Story of Our Genetic Mutation
Hello family, friends and fellow fighters, Today I'm going to share the story of uncovering the genetics behind our girls' Dravet diagnoses. Before sharing our story, I wanted to share…
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Meet Nova-Part 2
In my last post about Nova's journey, I ended with sharing that around her first birthday we decided to switch neurologists. I still to this day wonder if that was…
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Meet Nova – the OG Warrior Princess
This is our first warrior princess, Nova. Nova's name means bright star, and that is just what she is. Her middle name is named after my closest cousin, and she…