Posted inBlogmas Denver Mom's Marvels
Blogmas Day 8- Dravet Doesn’t Come in Duplicates
Just when you think you know it all, when you think you are prepared and you've finally got it all figured out - the world loves to give you an…
Day 6&7- Rough Weekend and Gingerbread Cookies
Hello friends and family! As you can probably assume by the lack of posts this weekend, it was quite a whirlwind. Denver has been teething for a few weeks, and…
Blogmas Day 5-Complications of Dravet
Hey guys, today I wanted to dive a little bit deeper into what Dravet is. Dravet is not just seizures, it is considered a DEE (developmental and epileptic encephalopathy). A…
Blogmas Day 1- Update on the Girls
HoHoHo! We are kicking off blogmas with a classic Warrior Princesses post. Today we are just going to update on Novie and Denver. Nova has been doing SO WELL on…
Update on the Girls
Hey friends! First off, I am sorry for my venting last week-sometimes these things are just hard! My hope in sharing the hard times, is when another parent is up…
Nova and Denver Update
Hello family, friends and fellow fighters, Today's post is just going to be a quick update on Nova and Denver. Since taking Nova off of Diacomit last month, we have…
Pediatrician Appointment/ Dravet Resources
Hello family, friends, and fellow fighters :) Today we had an AMAZING pediatrician appointment for both Nova and Denver! After talking with a few wonderful people in our Dravet community,…
Posted inNova
Nova’s Experience Stopping Diacomit
Hello family, friends and fellow fighters, Today is one week exactly since we completely stopped Diacomit for Nova. The reason we chose to do this is we were not experiencing…
The Story of Our Genetic Mutation
Hello family, friends and fellow fighters, Today I'm going to share the story of uncovering the genetics behind our girls' Dravet diagnoses. Before sharing our story, I wanted to share…
Posted inNova
Meet Nova-Part 2
In my last post about Nova's journey, I ended with sharing that around her first birthday we decided to switch neurologists. I still to this day wonder if that was…