Nova and Denver Update
Hello family, friends and fellow fighters, Today's post is just going to be a quick update on Nova and Denver. Since taking Nova off of Diacomit last month, we have…
Pediatrician Appointment/ Dravet Resources
Hello family, friends, and fellow fighters :) Today we had an AMAZING pediatrician appointment for both Nova and Denver! After talking with a few wonderful people in our Dravet community,…
Posted inDenver
Denney’s Early Intervention Assessment
Hello family, friends, and fellow fighters, One of the awesome resources Florida has available is their Early Steps program. It is a no cost program that offers support for children…
The Story of Our Genetic Mutation
Hello family, friends and fellow fighters, Today I'm going to share the story of uncovering the genetics behind our girls' Dravet diagnoses. Before sharing our story, I wanted to share…
Posted inDenver
Meet Warrior Princess #2- Denver
This is our youngest warrior princess, Denver. Denver is named after my hero and favorite person, who passed too soon to meet my babies- my grandfather Denney. Denney was a…