Posted inBlogmas Denver Mom's Marvels
Blogmas Day 8- Dravet Doesn’t Come in Duplicates
Just when you think you know it all, when you think you are prepared and you've finally got it all figured out - the world loves to give you an…
Day 6&7- Rough Weekend and Gingerbread Cookies
Hello friends and family! As you can probably assume by the lack of posts this weekend, it was quite a whirlwind. Denver has been teething for a few weeks, and…
Blogmas Day 5-Complications of Dravet
Hey guys, today I wanted to dive a little bit deeper into what Dravet is. Dravet is not just seizures, it is considered a DEE (developmental and epileptic encephalopathy). A…
Posted inBlogmas
Blogmas Day 3/4 – Cinnamon Rolls & Rough Days
Well yesterday I didn't make it to a post sadly! Nova and Denver both had pretty rough days yesterday. Nova was shaking pretty much all afternoon- it was a super…
Posted inBlogmas Crafts Recommendations
Blogmas Day 2- Christmas Crafts
Happy Blogmas Day 2! We have been trying to spend more screen free time with Nova now that we have our Tonies Box- these are two of the crafts we've…
Blogmas Day 1- Update on the Girls
HoHoHo! We are kicking off blogmas with a classic Warrior Princesses post. Today we are just going to update on Novie and Denver. Nova has been doing SO WELL on…
Update on the Girls
Hey friends! First off, I am sorry for my venting last week-sometimes these things are just hard! My hope in sharing the hard times, is when another parent is up…
Posted inMom's Marvels
A Dravet Mom’s Diary
Hi friends, family, and fellow fighters- I want to start by saying, I am sorry in advance- but this post is not going to be my usual happy/grateful/positive post. Today…
Posted inRecommendations
Blue Tint Sunglasses
Nova has struggled with severe photosensitivity for about a year and a half now. We truly can not go outside at all due to her having extreme drop seizures. We…