The Family Behind Warrior Princesses

Our two Dravet warriors are Nova (almost 3) and Denver (freshly 1). These girls have changed all of our lives SO much- and for the better. You can find information about each girl under their name category or joint/family info under the category Our Family. Their mom is Addison (Addi Epilepsymama), and dad is Will (Will Epilepsydaddio). We will also be making posts sharing our personal experience as their parents under Mom’s Marvels and Dad’s Discoveries. Another integral part of our family is the girls’ Meemaw and Pop-Pop. They are the true superheroes-always there for support, even during the scary times. You can find posts from their point of view under Pop-Pop’s Perspective and Meemaw’s Moments. Our hope with this page is to share our kids’ experience while also sharing the emotions and thoughts you may experience as a parent or grandparent on this journey. Dravet is a rollercoaster of emotions and medical information- we are here to help you feel less alone and hopefully give you a perspective you can relate to. All we can do everyday is keep fighting together.