Posted inMeemaw's Moments
Purpose
Hi, I'm Meemaw! Trying my very best to see the world through these lil ones' eyes. I was always unsure of God's purpose for me. When I met Nova, I…
Posted inMom's Marvels
Mom’s Marvels: How My Daughters Saved My Life
Today I'm going to be sharing a little bit of my life's journey and how my daughters helped me find my purpose. As a very young child I struggled to…
Posted inNova
Nova’s Experience Stopping Diacomit
Hello family, friends and fellow fighters, Today is one week exactly since we completely stopped Diacomit for Nova. The reason we chose to do this is we were not experiencing…
The Story of Our Genetic Mutation
Hello family, friends and fellow fighters, Today I'm going to share the story of uncovering the genetics behind our girls' Dravet diagnoses. Before sharing our story, I wanted to share…
Posted inNova
Meet Nova-Part 2
In my last post about Nova's journey, I ended with sharing that around her first birthday we decided to switch neurologists. I still to this day wonder if that was…
Posted inNova
Meet Nova – the OG Warrior Princess
This is our first warrior princess, Nova. Nova's name means bright star, and that is just what she is. Her middle name is named after my closest cousin, and she…
Posted inDenver
Meet Warrior Princess #2- Denver
This is our youngest warrior princess, Denver. Denver is named after my hero and favorite person, who passed too soon to meet my babies- my grandfather Denney. Denney was a…